1. Introduction
1. The issue of access to rights for people with disabilities
at the Council of Europe is almost as old as the institution itself.
In 1957, the Parliamentary Assembly adopted
Recommendation 118 on the conclusion
of an agreement concerning reciprocal travel facilities for the
war disabled when travelling abroad by railway. That recommendation
never had much effect, mostly for financial reasons, but it was
one of the first in a long line of measures the Council of Europe
has taken to achieve the provision of equal opportunities for the
disabled population of its member states.
2. The Council of Europe’s work on disability issues started
in 1959 with the transfer of related activities, which had been
started in 1948 by the Brussels Treaty Organisation, were then continued
by the Western European Union (WEU) and finally, as from 1959, transferred
to the Council of Europe to be carried out within the legal framework
of the Partial Agreement in the Social and Public Health Field.
The first resolution dates from 1960: ResAP(60)2 on rehabilitation
of the disabled during employment. Until 2007, more than 60 policy recommendations
and resolutions were elaborated. In 2007, the disability-related
activities were transferred from the Partial Agreement in the Social
and Public Health Field to the Programme of Activities/Ordinary Budget
of the Council of Europe for all member states as from 1 January
2008.
4. Assembly
Recommendation
1185 (1992) was adopted one year after the first European
ministerial conference on disability (Paris, 1991) and very much
supported Recommendation No. R (92) 6 on a coherent policy for people
with disabilities, adopted by the Committee of Ministers on 9 April
1992.
Recommendation 1592
(2003) on the full social integration of people with
disabilities was adopted during the European Year of People with
Disabilities, when the Council of Europe organised the second ministerial
conference on disability (Malaga).
5. In its latest major, comprehensive effort to ensure all human
rights, full citizenship and the improvement of the quality of life
of people with disabilities, the Council of Europe has created the
Disability Action Plan 2006-2015, which deals not only with the
most severe and commonly mentioned issues such as equal opportunities for
persons with disabilities in employment, infrastructure or education,
but recommends a comprehensive plan of action to improve the situation
of persons with disabilities in all aspects of everyday life. Through
this report, the rapporteur intends to give an overview of the evolution
of the status of people with disabilities and the main issues currently
at stake, which have been addressed in the Council of Europe Disability
Action Plan.
2. Facts, figures, trends
6. The definition of “disability” is already a difficult
task on its own. The most commonly cited definition is that of the
World Health Organization (WHO) from 1980, which draws a three-fold
distinction between impairment, disability and handicap.
However,
many specialist organisations and activists have noted that this definition
is not precise and inadequate, which shows the complexity of the
problem; and a lack of consensus from the very first step. WHO itself
has realised that, which is why the organisation carried out a substantial revision
of the ICIDH, with the help of the Council of Europe between 1987
and 1996, resulting in the new WHO International Classification
of Functioning, Disability and Health (ICF), WHO, Geneva, 2001,
which uses completely new and different definitions. Most national
governments also use their own definitions for legislation purposes,
and clearly, the political will and capacity to deal with this issue
is reflected in this. One might say that governments can change
and use their disability-definitions according to their own will
and intentions.
7. It is important to highlight a significant change in the approach
to the problem of disability. Historically, disability has been
perceived through the so-called Medical Model, which basically sees
the disabled person as the problem, and tries to adapt him/her to
fit into the world as it is. As a result, curing or managing illness
or disability revolves around identifying the illness or disability,
understanding it and learning to control and alter its course. Therefore,
the response to disability has been mainly one of social compensation
through charity and the development of specialist caring services
outside the mainstream of society. However necessary and well intentioned
they might be, such responses have compounded the problem of exclusion
and under-participation.
8. In the past two to three decades, this traditional approach
has slowly started giving way to the Social Model of disability,
which proposes that barriers, prejudice and exclusion by society
(purposely or inadvertently) are the ultimate factors defining who
is disabled and who is not in a particular society. Many, more recent measures
have thus placed stronger emphasis on identifying and removing the
various barriers to equal opportunities and full participation in
all aspects of life. Lobbying by the disability community in several
cases has led to changes in governments’ social care policy to one
of civil rights which can empower disabled people to lead a self-determined
life. The new approach is already being implemented in many countries,
albeit in very different ways and at different speeds.
9. More than one person in 10 suffers from some form of disability;
an estimated 650 million people are affected worldwide. Europe is
even more affected; a recent survey
has
shown that nearly 15% of the working age (16 to 64) population in
15 member states of the European Union reported some form of disability,
while in the case of the 10 new states having acceded to the EU
in 2004, this percentage amounts to almost 25%.
10. The results of the survey also highlighted the fact that there
is a correlation between ageing and disability. Owing to the ageing
of the population and improvements in health care, the number of
people with disabilities in Europe is increasing and will continue
to do so. A further point to note is that only 42% of people with
disabilities are employed (compared to almost 65% of non-disabled
people), and 52% of people with disabilities are economically inactive
(compared to 28% of non-disabled people). The conclusion to be drawn is
that people with disabilities, while experiencing difficulties in
finding work, are a source of untapped potential for the development
of economic growth. At the same time, an enormous economic burden
is presented to society by disability and the costs related thereto
(health and social care, labour costs, etc.).
11. The European Year of People with Disabilities in 2003 was
a unique opportunity not only for disabled people all over Europe
to let their voices be heard and to highlight issues of concern.
It was also an occasion for national governments to step up their
activities and update their legislation on the rights of people
with disabilities, which many have indeed done. However, it is also
obvious that due to the size and heterogeneity of the population
concerned, it is difficult, if not impossible, to give one single
solution to the tackling of the social and economic problem of the
full integration of people with disabilities. Research should be
carried out to find the direction for new measures and action should
be taken in time to avoid the deterioration of the current situation.
12. These are the primary reasons why the Council of Europe is
trying to contribute to the general development of this field and
to help implement effective measures in order to achieve the equality
of opportunities for people with disabilities, through its Disability
Action Plan.
3. Overview of national and international instruments
3.1. Diverse and unequal efforts at national level
13. It is primarily the responsibility of national governments
to protect their own citizens, and thus a number of national instruments
also ensure the advancement of the rights of disabled people. Naturally
it is almost exclusively developed, industrialised nations which
can afford to propagate such values as the equalisation of rights
of persons with disabilities.
14. The German Constitution, for example, was amended by parliament
in 1994 to include a non-discrimination and equal opportunity clause
for persons with disabilities. German law assures people with disabilities
the right to use public transportation free of charge, allows for
tax-free ownership of specialised vehicles, and provides several
other benefits. The new law on equal treatment for people with disabilities
has been implemented in tandem with earlier framework legislation.
15. Specific mention of people with disabilities is also made
in the Portuguese Constitution, which sets out the principles of
non-discrimination, although major obstacles still exist to the
achievement of full citizenship, as specific policies do not exist
to promote the integration of people with disabilities. In Finland,
labour discrimination against disability/state of health is now
punishable by a fine or imprisonment of up to six months. Denmark,
one of the leading countries in regard to servicing the disabled
population, created a Disability Council back in 1980, which was
amended in 1993 by the Equal Opportunities Centre for Disabled Persons,
a supervisory and consultative body financed by the Ministry of
Social Affairs. The council has developed an effective dialogue
with the relevant authorities to provide specific solutions to the
problems it has documented through its work and its civil partners.
As an example, an action plan on disability is to be funded with
the aim of creating 800 to 1 200 new accommodation facilities for
people with disabilities.
16. Slovakia is another example of a country that has made visible
progress in the past few years; the Council for Citizens with Disabilities
was set up a few years ago to consult on disability issues. This
working group serves as a governmental advisory body regarding persons
with disabilities. The minister of labour, social affairs and family
chairs the council. Several NGOs have conducted public education
campaigns on mental illness and worked co-operatively with the health
ministry on the national health programme. The government sponsors
a contest for rewarding the local government most accessible to
persons with disabilities.
17. Some other examples, however, show the ambiguous nature and
mixed results of certain governments’ policies on disability issues,
or in some cases, a complete lack of effort from the state to improve
the quality of disabled people’s lives.
18. In Turkey, legislation provides basic protection against discrimination
in employment, education or health care. However, an international
NGO, after having conducted a two-year study in the country, claimed the
country lacked community-based support for mental patients and offered
no alternative to state institutions where the mentally disabled
persons were held separately from society in “prison-like incarceration”.
Specific abuses listed in the report included: mental patients committed
to psychiatric hospitals without judicial review; malnutrition and
dehydration of patients; lack of rehabilitation and physical therapy;
and excessive use of physical restraints.
19. France’s legislation on disability orders that all enterprises
with at least 20 employees, public or private, have a minimum of
6% of disabled persons on their staff, yet in 2005 only 45% of the
concerned establishments complied with this rule. The new Disability
Law, introduced in early 2005, was aimed at reinforcing the financial sanctions
to this rule as well as introduce several other measures, such as
establishing the principle of a right to compensation by introducing
a compensatory disability benefit, or the right for any child with
a disability to attend their local primary or secondary school.
Similar quota systems on the employment of disabled persons are
in place in several other countries such as Poland, Italy, Spain,
Austria and Germany, where severely disabled people also enjoy special
protection against dismissal from their employment. However, many
of these countries have encountered similar problems of employers
appearing to prefer paying a fine rather than fulfilling the quota,
the states being unable to enforce their laws.
20. In Hungary, while the government has recently announced plans
to remove all barriers from some 9000 public buildings and government
institutions by the year 2010, it has also introduced measures to
reduce the compensation of petrol costs to families transporting
their handicapped children to school, and cut tax benefits on specialised
cars. The Hungarian Government is also currently reforming its civil
code with particular focus on provisions concerning legal capacity
and guardianship. It is working closely with NGOs, including people with
disabilities, to ensure that the law provides for greater autonomy
for persons with disabilities when it comes to decision making and
exercising their rights, as advanced by the UN Convention on the
Rights of Persons with Disabilities.
21. In an ideal case, such efforts to provide for the wellbeing
of persons with disabilities are motivated by the traditions of
a nation to look after those of its citizens who are not fully able
to do so on their own. There are, however, several cases where this
tradition is not sufficiently embedded in national culture, and
thus policy on persons with disabilities is fuelled by various international
instruments which the European and international communities constantly
keep trying to improve and refine.
3.2. Need for leading instruments at international
level
22. Besides several general human rights covenants and
treaties, such as the Universal Declaration of Human Rights, or
the International Covenant on Civil and Political Rights as well
as instruments on other specific topics such as social or labour
issues which also contain clauses on persons with disabilities,
many instruments are specifically related to disability. The evolution
in approach mentioned earlier (from the medical model towards the
social/human rights model) can also be followed through these international
instruments.
23. The United Nations began its efforts to provide specifically
for the protection of the rights of persons with disabilities as
early as 1950, when its Social Commission considered the reports
“The social rehabilitation of the handicapped” and “The social rehabilitation
of the blind”. The Declaration on the Rights of Disabled Persons,
adopted by the General Assembly of the United Nations in December
1975, encouraged national and international protection of the rights
of people with disabilities.
24. The latest and much-awaited United Nations Convention on the
Rights of Persons with Disabilities, the first human rights convention
of the 21st century, already has close to 100 signatories. The principal
aim of the convention is to achieve a radical change of attitude
towards people with disabilities all around the world, to allow
all people with disabilities to live “dignified and productive lives”.
The convention requires countries to adopt new anti-discrimination
legislation and eliminate certain existing laws and practices in
order to guarantee freedom from all forms of discrimination, exploitation
and abuse for persons with disabilities, while protecting rights
they already have. States parties will need to report regularly
to a Committee on the Rights of Persons with Disabilities, responsible
for monitoring the implementation of the convention. This convention
is a major step for the international community, and time will tell
whether it becomes the strong and effective instrument it is intended
to be.
25. Hungary was one of the early signatories, in 2007, of the
United Nations Convention on the Rights of Persons with Disabilities,
along with 80 other states and the European Union. Yet of the 82
parties, only 44 signed the Optional Protocol to the convention
which binds states accused of violating its terms to respond to a
complaint through a proceeding before a special committee, thus
weakening the vital protections the convention offers to people
with disabilities. To date (May 2008), the number of signatories
to the convention has risen to 127, and those to the Optional Protocol
to 71 – and with 25 ratifications of the convention and 15 ratifications
of the Optional Protocol it entered into force on 3 May 2008.
26. Meanwhile, the European Union did not have clear legal competence
in the disability field until recently. EU policy on disability
changed in 1996 with the adoption of the famous Communication by
the Commission on Equality of Opportunity for Persons with Disabilities
which was endorsed by the Council. The concrete result of this was
manifested in the Treaty of Amsterdam (1997), which includes strengthened
provisions on equal opportunities and combating social exclusion.
Article 13 of the treaty enabled the EU to adopt directives combating
discrimination on the ground of disability (among other grounds).
The EU Charter of Fundamental Rights, proclaimed in 2000 in Nice,
also has important disability provisions – notably Article 21 prohibiting
any discrimination based on disability (among other grounds) and
Article 26 on the integration of persons with disabilities although
the charter does not have the status of a legally binding instrument
27. The most important European legal instrument on disability,
however, is the Framework Directive on Employment Discrimination,
the legal basis of which is Article 13 of the Treaty of Amsterdam,
which has led to an unprecedented amount of disability law reform
and case law all across Europe, including many non-EU states. To
maintain momentum, the European Commission issued its own action
plan, Equal Opportunities for People with Disabilities: a European
Action Plan, in 2003. The plan proposes to intensify efforts at
co-ordinating the rights-based approach to disability across a broad
range of competencies, and shows similarities with the Disability
Action Plan of the Council of Europe.
28. The European Commission has designated 2007 as “European Year
of Equal Opportunities for All” as part of a concerted effort to
promote equality and non-discrimination in the EU. After 2003, this
should be another important opportunity to emphasise the importance
of achieving equal opportunities for people with disabilities within
this framework, although unfortunately the initiative has received
little publicity so far.
29. For its part, the Council of Europe has been very active in
the protection of the rights of people with disabilities. Its most
important treaty, the European Convention on Human Rights, is one
of the fundamental European instruments relevant in the disability
context to date. The European Court of Human Rights, created in
1959, is the main body enforcing the European Convention on Human
Rights. Individuals as well as NGOs and states can bring complaints
before the Court against states parties, and the Court issues legally
binding judgments. It has issued several landmark judgments on disability
issues, continually establishing new standards and refining definitions
regarding basic human rights, such as that of private and family
life, inhuman and degrading treatment, or the right to life.
30. The European Social Charter (1961, revised in 1996) is its
natural complement for the protection of social and economic human
rights. Its Article 15 calls on states to ensure to persons with
disabilities the effective exercise of the right to independence
and social integration, including, specifically, in education, employment
and community life. The revised Charter established a supervising
mechanism to guarantee the respect of the rights and freedoms it
sets out, by way of the European Committee of Social Rights. Collective complaints
of violations of the Charter can be lodged with the committee, which
is also responsible for examining the yearly national reports submitted
by states parties and determining whether their legislation and practice
are in line with the Charter.
31. The Committee of Ministers has also adopted a number of relevant
resolutions and recommendations, such as the 1992 landmark Recommendation
No. R (92) 6 on a coherent policy for people with disabilities, which
contains policy principles for the rehabilitation and integration
of people with disabilities. The recommendation has set benchmarks
both internationally and nationally, thus prompting numerous amendments
to legislation in the member states. Other key documents include
Recommendation No. R (99) 4 on principles concerning the legal protection
of incapable adults, Resolution ResAP (95) 3 on a charter on the vocational
assessment of people with disabilities, Resolution ResAP(2001)1
on the introduction of the principles of universal design into the
curricula of all occupations working on the built environment (“Tomar Resolution”),
Resolution ResAP(2001)3 towards full citizenship of persons with
disabilities through inclusive new technologies, Resolution ResAP(2005)1
on safeguarding adults and children with disabilities against abuse,
Resolution ResAP(2007)3 “Achieving full participation through Universal
Design”, and Resolution ResAP(2007)4 on the education and social
inclusion of children and young people with autism spectrum disorders.
The most important step since the revision of the Social Charter
has been the Malaga Ministerial Declaration of 2003 on People with
Disabilities, Progressing towards Full Participation as Citizens,
followed by the corresponding Assembly
Recommendation 1592 (2003) on towards
full social inclusion of people with disabilities, which led to
the adoption in 2006 of Recommendation Rec(2006)5 on the Council
of Europe Action Plan to promote the rights and full participation
of people with disabilities in society: improving the quality of
life of people with disabilities in Europe 2006-2015 (or Disability
Action Plan).
32. Yet legal instruments of the Council of Europe, especially
the European Convention on Human Rights, do not guarantee a full
exercise of the fundamental liberties due to disabled people such
as the right to protection against poverty and social exclusion,
the right to decent housing, the right to live in the community, the
right to education, the right to work, and the right to personal
and family privacy.
33. As an example, freedom of movement can be mentioned, which
is a daily concern for people suffering from a motor handicap: it
is difficult for them to have access to some public places when
the latter do not benefit from adequate equipment. Moreover, children
and adults with disabilities placed into residential institutions
do not have the freedom to come and go as they please. A large proportion
of these people remain confined in institutions segregated from
the community for their whole lives.
34. As to the right to education, schooling for disabled children
is not generalised: thousands of children are not registered in
a classical teaching school nor in a specialised institution, which
is in contradiction with Article 2 of Additional Protocol No. 1.
Furthermore, as far as the respect of personal and family privacy
is concerned, the freedom to have sexual intercourse is rarely recognised
for the disabled either because of a physical handicap or because
of a mental handicap which points to abuse. Thus, the disabled suffer
from not being granted the same rights as anybody else.
35. One striking and prevalent example of how persons with disabilities
are denied equal rights and equal recognition before the law is
through the mechanism of guardianship. In most jurisdictions throughout
Europe, persons who have been deemed to lack the requisite capacity
to make decisions and take care of their needs are deprived of their
legal capacity and placed under guardianship, and choice, decision
making and power are handed over to a guardian who exercises these
competences with little if any regard for the personal preferences
of the person concerned. As a result, persons under guardianship
are deprived of their most fundamental rights such as the right
to choose their place of residence, to work, to marry, to execute
wills, to refuse or consent to medical treatment, to vote, to exercise
parental rights, to exercise property rights, and even the right
to defend their interests or make complaints before courts. The
European Court of Human Rights is only now beginning to recognise
the gravity and all-encompassing nature of guardianship regimes
and the preference of providing a “tailor-made response” to the
individual circumstances of the person concerned (Shtukaturov v. Russia, No. 44009/05,
27 March 2008).
36. In addition, the European Court of Human Rights judged that
there is a discrimination which is contrary to the convention “when,
without objective and reasonable justification, the States do not
apply a different treatment to persons in an appreciably different
situation” (European Court of Human Rights, 6 April 2000, case 34369/97, Thlimmenos v. Greece). This is the
case in particular for the imprisonment of disabled people, and also
for compensation for the handicap itself: although compensation
to the disabled by social benefits to help them pay for daily life
is admitted, the compensation for the prejudice linked with birth
when the handicap was foreseeable still remains legally in question.
37. It is so that “equal treatment” generally does not offer a
sufficient protection to victims of a handicap. Even worse, equal
treatment can sometimes be unfavourable to them when they claim
measures adapted to their situation. The right to a different treatment
is also measured meanly, knowing on top of it that, according to
the decision in
Thlimmenos v. Greece,
it can be waived if the state, as party, can avail itself of “objective
and reasonable justifications” for not offering differentiated measures
to persons being in “appreciably different” situations, such as
in the case of a handicap.
38. As Europe has become fully aware of the importance of guaranteeing
equal rights for every one of its citizens, the values of equality
and human rights upheld by the Council of Europe behove us, lawmakers,
to concern ourselves with disability, this fundamental question
of social cohesion, by proposing specific guidelines and measures
to its member states.
4. Tasks for the near future
4.1. Key priority areas
39. With relevant international and regional instruments
now in place which take into account country-specific conditions
as well as transition processes that are taking place in various
member states, the Council of Europe, as outlined in its Action
Plan, now encourages its member states to take concrete actions
at national level to develop and implement viable strategies to
bring about full participation of people with disabilities in society
and ultimately implement a mainstream approach to disability throughout
all the policy areas.
40. Mainstreaming involves the integration of services for people
with disabilities with those for other citizens. The goal is to
move away from policies which support segregation towards integration
in the mainstream wherever possible. However, mainstreaming does
not preclude the existence of disability specific policies, where
they are in the best interests of persons with disabilities.
41. Although the work to be done in order to achieve full citizenship
for all people with disabilities is manifold, there are certain
key priority areas, where action is of utmost importance and will
lead directly to increased quality of life for people with disabilities.
4.1.1. Legal capacity
42. Both the UN Convention on the Rights of Persons with
Disabilities and the Council of Europe Action Plan recognise that
persons with disabilities have legal capacity on an equal basis
with others. This means that persons with disabilities not only
retain their capacity to hold rights, but also their capacity to
act upon and exercise those rights, thus enabling their autonomy
and active participation in society. Guardianship measures run against
the new paradigm as they act to undermine a person’s independence
by substituting decision making rather than providing for supported
decision making.
43. Specific actions to be taken include:
- provide alternatives to guardianship which are least restrictive
and individually tailored;
- establishing supported decision-making services which
ensure that the person concerned retains full legal capacity whilst
receiving services from a support person/network, and ensure that
appropriate safeguards are in place to protect the person against
abuse and exploitation;
- maximise autonomy by ensuring that persons retain the
right to make decisions in all areas of life in which they have
functional capacity, specifically:
- abolish the automatic deprivation of the fundamental rights
of persons under guardianship to property, work, family life, marry,
vote, associate, access courts, make a will;
- require guardians to seek the least restrictive living
arrangements for persons concerned.
- prevent abuse of persons under guardianship and provide
sufficient guarantees of the right of persons to meaningful participation
in the guardianship process from the beginning of the process and
for as long as the person is under guardianship. Specifically:
- define in law sufficiently clear and specific bases for
filing an application for declaring a person incapable which also
specifies that a finding of incapacity is based on a demonstrable
link between diagnosis and functional capacity in practice;
- ensure that the person concerned is properly notified
and has access to information about all proceedings related to the
procedure for depriving the person of his or her legal capacity
and ensuring that they are present and heard at these proceedings;
- ensure that the persons concerned are consulted and that
their wishes are given due weight and consideration at all stages
including when appointing a guardian (with the right to challenge
the appointment of a guardian);
- establish a procedure for periodic review of guardians’
actions by an independent body that would be required to take into
account information received from the adult concerned;
- ensure that legislation mandates compulsory, regular and
meaningful reviews of guardianship at which the person concerned
is fully involved and adequately legally represented.
4.1.2. Community living
44. In order to enable active participation of persons
with disabilities in society, it is necessary that they are given
the opportunity to interact with the community. The practice of
placing children and adults with disabilities into institutions
undermines their inclusion as they are kept segregated from the
rest of society and suffer serious damage to their healthy development
and obstruction of the exercise of their rights. Deinstitutionalisation
is a prerequisite to enabling people with disabilities to become
as independent as possible and take their place as full citizens
with the opportunity to access education and employment, and a whole
range of other services.
45. Specific actions to be taken include:
- closure of institutions starting with the blocking of
new admissions into institutions and an entrenched shift from funding
of institutions to reallocation of resources and reorganisation
of services in the community;
- focusing resources and policies on the establishment of
alternatives to institutional living through development of community-based
services and networks which are responsive to the needs of disabled children
and adults, their families and caregivers;
- providing adequate and sustained assistance to families
to support their disabled kin in the family home;
- the development of effective, independent inspectorates
to monitor existing institutions;
- increased and shared research on best practices within
community settings;
- the full and active participation of persons with disabilities
in these processes.
4.1.3. Employment
46. Economic independence is paramount in providing the
means for self-determination in many spheres of life, thus access
to, and remaining in, employment is fundamental for people with
disabilities. Policies to increase their activity rate need to be
diversified – according to the employment potential of disabled
people – and comprehensive, in order to address all the barriers
to participation in the workforce.
47. Specific actions to be taken include:
- disincentives to work should be removed from disability
benefit systems in order to encourage beneficiaries to work when
they can. This will not be possible without an objective and individual assessment
which should identify their options regarding potential occupations,
and help them find appropriate employment or reemployment;
- protection against discrimination must be ensured in all
stages of employment, from selection and recruitment, to all measures
related to career progression;
- employers should be encouraged to employ people with disabilities
by applying recruitment procedures which ensure that job opportunities
are positively made available to people with disabilities, and making reasonable
adjustments to the workplace or working conditions;
- health and safety legislation and regulations should take
into account the needs of persons with disabilities and should not
discriminate against them in any case;
- support measures, such as sheltered or supported employment,
should be in place for those people whose needs cannot be met without
personal support in the open labour market, while measures should be
taken to support people with disabilities to progress from sheltered
and supported employment to open employment.
48. Ultimately, people with disabilities should be fully employed
within the open labour market by combining anti-discrimination and
positive action measures in order to ensure that people with disabilities
have total equality of opportunity in the field of employment.
49. Integration into the world of work is part of the socialisation
process for disabled persons. As Mr Cédric Fabre, Co-ordinator for
the Haut-Rhin, Regional Office of Assistance to Disabled Apprentices,
SARAH Alsace, says, “communication with work colleagues permits
the mentally handicapped person to be aware of his identity and
to be similar to others in this context. This opening up to others
helps him to feel fulfilled. The mentally handicapped person is
accustomed to functioning in a system based on interpersonal relations.
He is able to discover a functional infrastructure.”
4.1.4. Education
50. All persons, irrespective of the nature and degree
of their impairment, and regardless of whether they live in institutions
or within the community, should have equal access to education at
all levels. Mainstream and specialised structures should be encouraged
to work together to support disabled people in their local communities,
but this should be consistent with the goal of full inclusion.
51. Specific actions to be taken include:
- moving away from specialised schools and the practice
of separating students with disabilities which can result in greater
marginalisation, and moving towards inclusive education in mainstream
schools for all children with disabilities;
- supporting and promoting lifelong learning for disabled
people of all ages; it is important that effective transitions can
be made between each phase of their education and between education
and employment;
- ensuring that all educational material and schemes provided
through the general educational system are accessible to persons
with disabilities;
- ensuring access to non-formal education allowing disabled
youth to develop needed skills otherwise unattainable through formal
education.
52. It is extremely important to foster an attitude of respect
for the rights of people with disabilities at all levels of the
educational system, from the earliest possible age. This can be
achieved by making disability awareness a key part of education
programmes in mainstream schools and institutions.
4.1.5. The built environment
53. The universal goal of creating a society for all
cannot be achieved unless all citizens have equal access to the
environment they live in. Making the environment accessible to persons
with disabilities and removing existing barriers which prevent them
from fully participating in daily life and enjoying their fundamental
rights is vital.
54. As promoted by Resolution ResAP(2001)1 on universal design,
the principles of universal design should be introduced into the
curricula of all occupations working on or with the built environment,
such as architects, engineers or town planners, in order to simplify
life for everyone by making the built environment more accessible,
usable and understandable.
55. Specific actions to be taken include:
- removing existing barriers from public buildings and public
indoor or outdoor environments, and ensuring that no new ones are
created. All new constructions should be in accordance with the
principles of universal design, including, for example, new pavements,
which should not be constructed without dropped kerbs;
- due attention should be paid to the safety of people with
disabilities in the design of emergency and evacuation procedures;
- assistive animals accompanying persons with disabilities
should have free access to all buildings and public areas.
4.1.6. Transport
56. The question of accessibility of the built environment
overlaps with the issue of transport, another key area to be developed.
Many states have progressed far in the implementation of accessible
transport policies; however, much work remains to be done. The whole
transport chain must be accessible in order to ensure that disabled
people can benefit from public transport systems.
57. Specific actions to be taken include:
- mandatory disability awareness training should be included
as part of the standard training courses for persons engaged in
public transport service provision;
- public transport service operators should be encouraged
to provide accessible services to all users;
- assistive animals (that is, guide dogs) accompanying people
with disabilities should be accommodated in all public transport;
- parking facilities for disabled people with reduced mobility
should be provided and protected.
58. Measures concerning transport in particular are omnipresent
and benefit all users of public transport systems, including other
groups with special needs, such as elderly people or parents with
young children.
4.2. Further important points
4.2.1. Health care
59. People with disabilities have the same right as other
members of society to good quality health services and relevant
treatment and technology to ensure the best possible health. However,
there are cases where disabled people require special health care
services to improve the quality of their life – in these instances,
the disabled person or their representative should be consulted
and involved in the decision-making process regarding their personal
care plan, and care should be taken that all relevant information
is provided in a format understandable to the disabled person. This
approach allows the individuals to make relevant decisions about their
own health.
60. When planning and delivering health care services, priority
should be given to early intervention; effective measures to detect,
diagnose, and treat impairments at an early stage should be established,
and effective guidelines for early detection and intervention measures
should be developed. New policies should take into account the ageing
of the population and the related health consequences, particularly
for persons with disabilities.
61. Health care professionals in all member states should acknowledge
the social and human rights model of disability and not focus solely
on the medical aspect of disability.
4.2.2. Rehabilitation
62. Comprehensive rehabilitation services should be organised
and extended in order to enable people with disabilities to attain
their maximum independence and achieve their fullest physical, mental,
social, and vocational ability. Rehabilitation programmes should
be accessible and tailored to the individual needs of the disabled
person, developed and delivered with the consent and participation
of people with disabilities, their families and representative organisations.
People who become disabled should be supported in returning to work
at the earliest opportunity by involving both employers and employees
in vocational rehabilitation.
4.2.3. Social and legal protection
63. In order to ensure the implementation of certain
social rights such as the right to social security, the right to
benefit from social welfare services or the right to social and
medical assistance, people with disabilities must have equal access
to social protection. To achieve the fullest possible independence
and social integration of people with disabilities, policies should
be promoted which point towards a shift from financial benefit dependency
towards employment and independence. A coherent balance between
social protection measures and active employment-oriented policies
should be achieved in order to discourage inactive benefit dependency.
In general, social services should take account of the specific
needs of people with disabilities and their families.
64. Access to the legal system is another fundamental right of
every citizen, including people with disabilities who in addition,
to a greater or lesser extent, require additional safeguards in
order to enjoy their rights to the full and to participate in society
on an equal basis with other members. Barriers preventing persons
with disabilities from accessing the legal system and legal mechanisms
such as guardianship, must be eliminated by a range of measures
and positive actions, including general awareness raising as well
as specific training among the legal professions on human rights
and disability issues. The principle of non-discrimination should govern
national policies designed to provide effective access to justice
for persons with disabilities on an equal basis with others.
4.2.4. Research
65. In addition to these prominent issues, member states
must recognise that the dynamics of their population is changing,
and comprehensive, diversified and specialised research is necessary
on all disability issues in order for these demographic changes
to be followed up adequately with regard to disability. The lack of
data in relation to people with disabilities is recognised as a
barrier to policy development.
4.2.5. Ageing
66. As most member states’ populations are ageing, special
account should be taken of the fact that the growing number of elderly
in Europe is giving rise to an increasing burden of old age disability;
that of reduced independence, an increased use of various services
and decreased quality of life. There is increasing evidence that
many of the risk factors for old age disability, several of which
are related to socioeconomic and living conditions, are modifiable.
Thus, there is severe need for health services research and health
economic studies related to old age disability, as well as research
on environmental risk factors, which have not received sufficient
emphasis in earlier research. Comprehensive research should also
be carried out on rehabilitation measures aimed at recovery and
reintegration in the community, and applied scientific research
should be encouraged into new technologies, devices and products
that can contribute to the independent living and participation
of disabled people in society.
4.2.6. Awareness raising
67. Given the fact that most disabled people consider
society’s attitude to be the biggest barrier to their full integration,
awareness raising and the sensitisation of the general public to
disability issues may be the most important task of all. In many
cases, persons with disabilities are still confronted with unacceptable
attitudes, and change cannot be brought about if people are not
aware of the difficulties they face every day, often stemming from
prejudice, fear or distrust. The fact that persons with disabilities
have the same human rights as all other people must become a matter
of fact to everyone, and emphasis must be placed on distributing examples
of good practice in all areas of life to raise awareness in the
community, working environment and education from the earliest age
possible.
4.2.7. Involvement of people with disabilities
68. Above all, each of the actions outlined in this report
should be discussed and implemented with the active involvement
of people with disabilities. In this way the principle of full participation
is put directly into practice contributing to the creation of a
truly inclusive society.
5. Conclusions
69. The rapporteur believes that his report comes at
a very historic moment: 2008 is the year the UN Convention on the
Rights of Persons with Disabilities entered into force (on 3 May)
and the year when at the Council of Europe all disability activities
are carried out under the Programme of Activities/Ordinary Budget
of all 47 member states and no longer within the limited framework
of the Partial Agreement in the Social and Public Health Field (18
member states in 2007), when we have a Disability Action Plan and
body to oversee the promotion, implementation, and follow-up of
that Action Plan (“European Co-ordination Forum for the Council
of Europe Disability Action Plan 2006-2015” (CAHPAH)).
70. The rapporteur is convinced that in order to provide equality
of opportunity and full citizenship for people with disabilities,
the Council of Europe Disability Action Plan should serve as a reference
document for all new policies and actions carried out in the area
of disability. All member states should use it as a practical policy tool
to help them in the implementation in Europe of the UN Convention
on the Rights of Persons with Disabilities.
71. Obviously, member states have the primary responsibility for
carrying out these actions and policy changes at a national level,
whereas at European level, the follow-up should focus on strengthening
co-operation, exchange of information, experience and best practices
in a structured way. In addition, national parliaments should request
their national governments to regularly report to them (national
parliaments) on the situation of people with disabilities in the
country, also including information on the implementation of the Council
of Europe Disability Action Plan at national level.
_____
Reporting committee: Social, Health and Family Affairs Committee.
Reference to committee: Doc. 10675,
Reference No. 3262 of 30 June 2006.
Draft resolution and draft recommendation adopted by the committee
on 23 June 2008.
Members of the committee: Mrs Christine McCafferty (Chairperson), Mr Denis Jacquat (1st Vice-Chairperson),
Mrs Minodora Cliveti (2nd
Vice-Chairperson), Mrs Darinka Stantcheva (3rd
Vice-Chairperson), Mr Francis Agius, Mr Konstantinos Aivaliotis,
Mr Farkhad Akhmedov, Mr Vicenç Alay
Ferrer, Mrs Sirpa Asko-Seljavaara,
Mr Jorodd Asphjell, Mr Lokman Ayva, Mr Zigmantas Balčytis, Mr Miguel
Barceló Pérez, Mr Andris Berzinš, Mr Jaime Blanco García, Mr Roland Blum, Mrs Olena Bondarenko, Mrs Monika
Brüning, Mrs Bożenna Bukiewicz,
Mrs Karmela Caparin, Mr Igor
Chernyshenko (alternate: Mrs Tatiana Volozhinskaya),
Mr Imre Czinege, Mr Karl Donabauer, Mrs Daniela Filipiová,
Mr Ilija Filipović, Mr André Flahaut, Mr Paul Flynn, Mrs Pernille Frahm, Mrs Doris
Frommelt, Mr Renato Galeazzi (alternate: Mr Manfred Pinzger), Mr Henk van Gerven, Mrs Sophia
Giannaka, Mr Stepan Glăvan, Mr Marcel Glesener,
Mr Luc Goutry, Mrs Claude Greff (alternate: Mr Laurent Béteille), Mr Michael Hancock, Mrs Olha Herasym’yuk,
Mr Ali Huseynov, Mr Fazail İbrahimli, Mrs Evguenia Jivkova, Mrs Marietta
Karamanli, Mr András Kelemen, Mr Peter Kelly, Baroness Knight of
Collingtree, Mr Haluk Koç,
Mr Andrija Mandić, Mr Michal Marcinkiewicz (alternate: Mr Marek Wikinski), Mr Bernard Marquet, Mr Ruzhdi Matoshi, Mrs Liliane Maury Pasquier, Mr Donato Mosella,
Mr Felix Müri (alternate: Mrs Doris Stump),
Mrs Maia Nadiradzé, Mrs Carina Ohlsson,
Mr Peter Omtzigt, Mrs Lajla Pernaska, Mrs Marietta de Pourbaix-Lundin,
Mr Cezar Florin Preda, Mrs Adoración Quesada Bravo (alternate: Mrs Blanca Fernández-Capel), Mrs Vjerica Radeta,
Mr Walter Riester, Mr Andrea Rigoni, Mr Ricardo Rodrigues, Mrs Maria
de Belém Roseira, Mr Alessandro Rossi, Mrs Marlene Rupprecht, Mr Indrek Saar, Mr Fidias Sarikas, Mr Andreas Schieder, Mr Ellert
B. Schram (alternate: Mr Kristinn Gunnarsson),
Mr Gianpaolo Silvestri, Mrs Anna Sobecka,
Mrs Michaela Šojdrová, Mr Oleg Ţulea, Mr Alexander Ulrich, Mr Mustafa Ünal, Mr Milan Urbáni, Mrs Nataša
Vučković, Mr Dimitry Vyatkin (alternate: Mrs Svetlana Goryacheva), Mr Victor Yanukovych
(alternate: Mr Ivan Popescu),
Mrs Barbara Žgajner-Tavš, Mr Vladimir Zhidkikh, Ms Naira Zohrabyan.
NB: The names of the members present at the meeting are printed
in bold.
The draft resolution and the draft recommendation will be
discussed at a later sitting.